Read this. Five Reasons Fatigue Isn’t Just Like Normal Tiredness Proving Most People Don’t Get It #DoYouGetItYet?
Tired of questioning looks thrown me on good days, interrupting my enjoying them. In fact, it’s a huge yay, a big treat and a relief to be able to get a lot done & even do a big thing for fun or self-improvement, like go running again, or go clubbing, aka perform or promote drag, the necessity, the epitome.
Not only do people not seem to understand the arc or schedule of fatigue, of these kinds of conditions and particular conditions, such as the unique metabolic cycle of hEDS…or the differing lifetime laxity/arthritic pattern from the norm (and) over time, but…
What most don’t realize is that it’s even more of a change for a poor queer*. It’s a flip, a 180. I bicycled for ABOUT 90% OF MY TRANSPORTATION EVERYWHERE AND ANYWHERE, from the time I was 12 to the time I was 33. If I wasn’t, I was walking and taking the bus, or just walking, which included lots of jogging, while carrying heavy bags of whatever I needed, often a third of my body weight. Groceries, projects to school, moving on the subway. The bicycles almost never fit me correctly and often didn’t work right, so my knees and other joints did the work of the WD40 I couldn’t afford, and pushed through rusty chains, stretching across the ever too-big wrong-proportioned crossbar and downtube**.
I even rode the several miles to work after my seat was stolen, somehow, craftily, avoiding skewering from the direction from underneath. This means I was riding standing on the pedals the entire time. Luckily downhill, that commute, but the slope created more risk sans saddle, and at the end of the shift, an uphill charge.
That job gave me a split shift, so I often made that commute 4x per day. A portion of the job was pretty physical. I made less than $40 per day. And I even worked in TV.
*One who has ambition. I have the privilege of being raised to value education, of hoping to pursue intellect.
**Yes, downtube is a word, classist, ignorant, car-culture polluting Zuck autocorrect.